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We and many other researchers are putting a lot of energy into the development of sight-restoring therapies. As we go, we must never forget to listen to our potential future patients! They are the only ones who can tell us what they actually need and what our research needs to deliver to make a real difference in their lives. This is why we have just started an interview study, and we would love to talk to affected individuals:

Interview Study

Optogenetics from the Patient's Perspectiv

A New Approach to Vision Improvement

Background
This study aims to understand the expectations and concerns of people with hereditary retinal diseases regarding optogenetic therapy. This is a new type of gene therapy intended to restore vision in advanced retinal diseases. We are particularly interested in the benefits of this new therapy for participants and the conditions it must meet to be useful in daily life. 

Who can participate?

• You are at least 18 years old
• Your severe visual impairment (light perception or worse) has been medically confirmed
• You have been diagnosed with a hereditary retinal disease (e.g. retinitis pigmentosa)
• You are willing to share your personal perspective on therapeutic approaches aimed at restoring vision with us

Participant selection: If you are eligible for the study, you will receive an invitation after contacting us. We will then inform you about the study by telephone and arrange an appointment for the interview together.

Interview procedure: The interview consists of a standardized questionnaire and a semistructured interview. It will take place by telephone or video conference, according to your preference, and last approximately 30 minutes.

Interested? Contact: Rayan Rashid